3 year ME & EDS diagnosis anniversary

This weekend marks my 3 year anniversary of being diagnosed with both ME/cfs & hEDS. Just like a flick of the switch, another year has gone by. Being chronically ill in 2017 has shown me that life is far too short. No matter how hard I try, I can't predict how my ME, EDS & hearing loss will progress in the coming years. Instead, I'm going to make 2018 the year to embrace my unexpected life

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Another day, another year

As I write this, I'm sitting on my sofa thinking about all that has happened in 2017. Most people I know will be struggling with hangovers and blurry memories of last night, and instead I was sat alone in my flat trying to eat food. I've been normal person sick my entire break from work, … Continue reading Another day, another year

Invisible illnesses, mobility aids & body-image

I talk about my disabilities a lot, it’s hard not to when they affect every second of your life. Today, I’m going to zone in on something I struggle hugely with: self-image. You see, being sick with invisible illness takes a very big hit on your self-esteem. To the outside world you don’t look like … Continue reading Invisible illnesses, mobility aids & body-image

22.05.17; The Night Manchester Will Never Forget

[I've been debating if I should write this at all, but writing seems to be one of the few things that helps me cope these days] On 22nd May 2017, at 10.30pm, Manchester's heart was broken. A man - that I refuse to name because he doesn't deserve to be talked about -  made a … Continue reading 22.05.17; The Night Manchester Will Never Forget

I’m doing the Manchester 10K in the FIRST EVER powerchair team

***Announcement time*** Last week I met with a fellow EDS warrior – Cherylee Houston (Izzy in Coronation Street) – at an MMU event. We chatted about my background and what she’s been up to recently, and she told me about her charity TripleC. Cherylee has been campaigning with Nova International to allow powerchair users to … Continue reading I’m doing the Manchester 10K in the FIRST EVER powerchair team

Loneliness in 2017: the silent epidemic in young people

It's 2017, a time when most of the planet are connected to each other in milliseconds. You literally can't escape people, but I've never felt more lonely. It's suffocating, and people are suffering in silence. It's so easy, you don't even realise it's happening until it's too late. But when you think loneliness, you always think … Continue reading Loneliness in 2017: the silent epidemic in young people

Learning to hear again [Hearing Aids Update]

A while ago I wrote about my hearing loss for the first time (click here to read the full post). In fact, I've never really told anyone about it apart from the occasional ''I can't actually hear you right now'' comments. Here's the recap: I may (or may not) be going progressively deaf. I was boring hearing, … Continue reading Learning to hear again [Hearing Aids Update]

Yes, I’m now the proud parent to a pair of hearing aids

It caught me by surprise too, but first, let's rewind. I got diagnosed with ME/CFS & hEDS at the start of 2014. Bummer, but I've talked about that before on here. What I haven't told many people is that they may or may not impact an individuals hearing. It's another great mystery that comes with … Continue reading Yes, I’m now the proud parent to a pair of hearing aids

ME: The illness that medicine forgot

ME is in the media again, and finally it's something fee from bias, something... true. Jen Brea, from the bottom of my heart, thank you for your TED talk. In 17 minutes you said it all. ME destroys lives, ME kills people. Two simple statements, both or which the medical field don't understand. Decades of … Continue reading ME: The illness that medicine forgot

2 Year Diagnosis Anniversary

Today, 2 years ago today, my life changed forever. I was finally diagnosed, they finally knew what was wrong with me. One simple appointment for a confirmation of my ME/CFS diagnosis, and I walked out with not only that but hEDS too. Something I did not expect, but I am grateful that it happened. You see, … Continue reading 2 Year Diagnosis Anniversary